My son, Tyler, was born (in 1992) before his genetic abnormality was even named!
When looking for information, I kept finding the same single page of minimal information. Then I found a support group on the very young internet. All information at the time was in print in the form of newsletters.
Tyler was different health-wise than most other children featured in the newsletter. I treated him as normally as possible, even with his obvious issues of being nonverbal and developmental delays.
He was diagnosed with leukemia in 2004. He was treated and is a survivor!
Fast forward to Facebook! I was reunited with the support group! Seeing the many other children like Tyler from around the world has been so amazing!
Comparing, discussing, and knowing we are not alone has been amazing! What a special family we have!
Tyler is now 30 years old! What a true miracle he is!
Thanks to Chromosome 22 Central!
-Allyson
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