Sunday, 9 January 2022

Do what you love: By Nahani Rose


I think it's really important for us to find our passions and stick with them, for survival in today’s world, but especially for someone with a condition such as this one(22q11.1del), or any.  

I knew as a child I loved music and art. This is still a major thing for me, and Covid has brought the passion back.  

I had other wounds in the way and self-esteem issues. I also have a passion for film and great acting, even on TV. If I lived closer to Hollywood, I would have probably gotten into acting more. Drama was one of my favourite classes in high school, and my daughter LOVES anything of this nature too. 

Instilling and helping your child to follow their heart is so important. I really think it’s the key to surviving ‘’anything’’ these days, and keeps us above the water when we are struggling with things emotionally or physically, or just struggling.  

Drawing has always been one of my passions. Thanks to Covid, I had time to learn my portraits (my one aunt whom I am very close to also does portraits).  I am waiting for a drafting table from my mom so I can do better work.  

I find drawing one of the most relaxing things to do, as well as colouring. Great for mental and emotional health.  

My grandma Edna was very encouraging with my music and would be so happy with what I am doing right now with it, especially through Covid.  

My passions have kept me afloat during the tough times, during loneliness, during physical discomfort. Getting home from a bad day at school (bullies), if I got on the piano it would sometimes be ‘’hours’’ before I got off.

I wouldn’t be where I am today without following my passions; recently and finding and re-connecting to my roots. Drawing, piano, photography, anything music (there are many ways music can be taught and experienced). Scrapbooking and cardmaking are other things I have been into in the past.  

If you or your child don’t know what they like, have fun exploring together!! I think it's so important for the parents to do this as well, for raising their child and for their own well-being in that journey. 

-By Nahani Rose


What I share here for this website is based on my own experiences, thoughts and feelings as a person with 22q11. My purpose in sharing is to help those who may be just learning, and have young ones, and may feel overwhelmed. I know what has and hasn’t worked for me, and I want to help those who do feel overwhelmed, feel less overwhelmed. This does not mean my suggestions ‘’will work for you,’’ but, they are suggestions, and I hope that if they do work, YAY! My hardship will help those not have the same experiences as I have. I am not a doctor, psychologist, nurse or other practitioner.

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